My sister has DOR too. She isn’t a suitable donor candidate, and her OAR (Ovarian Assessment Report) is 7, which is borderline low. That’s what mine was when we started aggressive IVF treatment. So not only is she not a suitable donor, she has seriously decreased fertility
I…I don’t even know what to say. I’m devastated for her, for us both. There are just no words.
Oh I am so sorry. This is so devastating for you both. How old is she and what is OAR? I know of AMH and FSH and AFC, but not that. I am so sorry for you both – it sucks.
She’s 31. OAR is a report that takes into account your AMH, FSH, AFC and all the other metrics and gives you a fertility “score” which is an assessment of how likely you are to be successful at procreation. 1-5 is low and means you’re not a candidate for IVF, 6-? is Fair and ?-20ish(?) is Good. I never looked at the higher scores since it wasn’t relevant to me at the time. When I went it for assessment I scored a 7, and my RE recommended immediate, aggressive IVF, which was obviously unsuccessful. Given my new blood work and follicle count I am a 5. I haven’t seen her blood work yet (she sent in the release form this afternoon) but her AFC was 10, so it must be the blood work that’s bad.
so sorry…are there any other options? praying for a miracle. I really believe they still do happen. blessings to you both.
Oh no, I am so, so sorry! You’re right, there are no words. I don’t know much about what those numbers actually mean, but I hope that whatever your next step is, it’s one that is successful and heals your heart.
I am very sorry that you and your sister have received this news.
For what it’s worth, I have been remembering you and your sister in my meditations. I wish things were different for you.
Thank you. That means a lot to me.
I’m so f’ing sorry to hear this, for you and your sister, and can hear your pain in your posts and want you to know I think about you often, and am out here rooting for you as you keep going. This is another obstacle, for you and for her, but overcome-able, as you’ve proven so far. Although horribly painful, now she has information that might help her make decisions about her own future–perhaps in a backwards way is a gift for her to know the truth about what’s going on in her body now rather than later. (I wish I’d had this test done years and years ago, myself.) Also, if and when you feel ready, there’s this huge community of women out here who are considering using donor eggs from women not biologically related to us—I vacillate in how I feel about it, but overall, know in my bones that I’ll be too busy loving my kid fiercely to perseverate on the biological origins of the egg. There’s also interesting research out there on epigenetics that postulate that there can be three biological parents—as the gestational carrier, you influence how the developing fetus’s genes are expressed. I just wanted to share a little of what I’ve been struggling with and taking in, with the hopes that it is at all helpful as you are experiencing loss and pain. There is light at the end of this tunnel. Hang on, we’re out here for you.
wow. I am so sorry to hear this. For both of you. I am sure the last thing you want is for your sister to have to struggle with the same thing.
oh god, I’m so so sorry for you and your sister. xxx
A Crack In Everything said:
New visitor here. I just want to say how sorry I am for the crushing news that you and now your sister have heard this week. As someone else with DOR who was told that I’m unsuitable for IVF, I’ll never forget that punch-in-the-gut feeling and wish that no-one else had to feel it, ever.
Even with FSH of 18 and AMH <0.5 (a year ago), I did manage to get pregnant this winter with something called natural-cycle IVF. It involves no stimulation, just ICSI with a single egg and sperm. But then I miscarried at 12 weeks, probably due to the egg-quality issues that are part of DOR, as you already know too well.
l hesitated to mention this at all, because I REALLY don't want to mess with emotions by offering false hope, or to insult you by mentioning options that you've already rejected. I'm just putting it out there, for whatever it's worth, and would be happy to answer any questions. But I'd be the first to acknowledge that it's a long shot, and that donor eggs (if you're still able to go down that path without your sister's help) sound like a logical choice.
Whatever you choose, I wish you the very best of luck. In the meantime … thinking of you and wishing you peace.
I’m so sorry for this devastating news for you both. Thinking of you and your sister.
I am so very sorry. I cannot even imagine the discouragment you must feel. Praying for you and your sister.
Catherine Tucker said:
I’m so very sorry.
I am sorry to hear about this. I can’t imagine how crushing this is for both of you. Thinking of you.
Here from LFCA. I am so sorry to hear this. I am 34 (almost 35) and have just been diagnosed with DOR as well, moving on to donor egg. It is nothing less than devastating and now your sister as well…I can’t imagine the double grief you’re experiencing. Best of luck to your family. You’ll be in my thoughts.
Here from LFCA… I’m so incredibly sorry. How devastating for both of you… thinking of you during this difficult time.
I stumbled across your blog and I’m so sorry to read this. How crushing for both of you to deal with this, especially when she was prepared to donate to you. Ugh, what a blow. Hope you can find other ways of pursuing donor egg IVF if that’s still an option for you.
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